Guide to Patient and Family Engagement : Environmental Scan Report

ii This document is in the public domain and may be used and reprinted without further permission. The opinions presented in this report are those of the authors, who are responsible for its content, and do not necessarily represent the position of the U.S. Department of Health and Human Services or the Agency for Healthcare Research and Quality. None of the authors have any affiliations or financial involvements that conflict with material presented in this report. This goal of this project is to promote patient and family engagement in hospital settings by developing, implementing, and evaluating the Guide to Patient and Family Engagement: Enhancing the Quality and Safety of Hospital Care (hereafter referred to as the Guide). The Guide will comprise tools, materials, and/or training for patients, family members, health professionals (e.g., hospital clinicians, staff), hospital leaders, and those who will implement the materials in the Guide. Our preliminary vision of the Guide included four components, each with a series of " tools " (e.g., materials, resources, items for training): (1) Patient and Family Active Involvement Materials; (2) Patient and Family Organizational Partnership Materials; (3) Health Professional Materials; and (4) Leadership and Implementation Materials. The tools in the Guide are intended to: • Support the involvement of patients and family members in the safety and quality of their care. • Encourage the involvement of patients and family members in improving quality and safety within the hospital setting. • Facilitate the creation of partnerships between health professionals and patients/family members. • Outline the steps needed to implement changes. This report presents the results of the environmental scan that serves as an evidence-based foundation for the development of the Guide. In conducting this environmental scan, our intent was to: be comprehensive while targeting topics and questions that are directly relevant to the goals of the project; reflect the concepts of consumer engagement and patient-and family-centered care around the issues of patient safety and quality in the hospital setting; and incorporate diverse input and perspectives from multiple individuals and organizations representing patients, families, health professionals, and hospitals. We developed a working definition of patient and family engagement and a guiding framework to organize and inform our search. From the framework, we identified five main topic areas for further investigation: 1. Individual characteristics, perspectives, and needs of the target audiences—patients, families, and health care professionals—with regard to patient and family engagement. 2. Organizational context …